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A Message From Tender Joints Founder |
I was diagnosed with Rheumatoid Arthritis in January of
2007. It hit quickly and over the first year took away so much of my
life. I had a very difficult time dealing with this disease and what
it was doing to my body. I had always been a very active and
independent woman, and I was quickly losing all of that, and didn't know
how to deal with it. I became angry...I felt I had lost 'me' and
become a 'disease'. I was newly married to a wonderful
man who tried to help in every way he could. But, as someone who
had never needed help, I was not able to handle it. I felt as
though he looked at me with pity, and that was not what I wanted.
I also began to feel that he didn't deserve to be 'stuck' with someone
like me. It tore us apart, and that tore me apart even more.
In one year, this RA monster had taken away my mobility, my ability to
work, my ability to do a lot of things, and had taken the man I loved.
I have spent a lot of the last few months reflecting on my life and
how RA has changed it. I finally came to the realization that I
am still me...I just have a disease. One that I can no longer
let define who I am. And it was in that realization that I
decided to create Tender Joints. I wanted a place where others
with RA could come for support, information, and understanding.
Because let's face it...unless you have Rheumatoid Arthritis, you
can't begin to understand what it is like. No matter how much
family and friends you have around you...supporting you...they just
don't always understand. The 2007 Holiday season
brought many changes to my life. On the medical side, the RA has
progressed to almost every joint, I was hospitalized with heart
problems (and we are still trying to determine if they are RA
related), and am now using forearm crutches to assist in walking.
The fatigue and 'brain fog' are still bad, but I am learning to work
around it all. My Rheumy and I are still working to find the
right med combo, and I am praying 2008 will bring good things.
On a more personal and important note, the holidays also brought my ex
back into my life, and we are working on us. If anything, this
last year with RA has taught me what is really important, and that is
my family (my wonderful husband and 3 kids) and friends. They
are who make me who I am...not RA! I may not be able to do all
the things I used to, but I can still love, I can still care, and I
can still spend time with those that mean the most to me. RA has
changed my life in a lot of ways, but it has made one important
change. It has made me stop and realize that life is a
gift...that friends and family are precious gifts, and it is important
to me to treasure all the special times I have with them.
And this is where Tender Joints comes into the picture. If, with
this site, I can help just one person get through a new diagnosis with
RA or a 'bad flare', then it will have succeeded in what it was meant
to do. If I had found a support site when I was first
diagnosed and struggling to deal with everything, I think it would
have helped...and the goal of Tender Joints is to be that help!
So, I would like to welcome you to the Tender Joints Community...kick
off your shoes and get comfy...we are here for you! |